If you are like me and working mainly remotely and are spending too much time talking to the dog or cat or just the lamp on your desk. I offered the lamp a coffee when I got up to make one the other day and thought, I need some background noise or I might loose my mind even further!
I thought I would share with you my favourite podcasts so I don't feel like I am on my own. There are so many more but these are just some of my go to choices that help me through the day.
If you are a fan of true crime I really recommend Serial Killers. Every Monday and Thursday you get a psychological and entertaining glimpse into the mind, method and craziness of serial killers thought the World and ages. They are very in-depth and delve deeply into their lives and history. Its not for the faint hearted though!
Along the same line but like listening to a chat amongst your friends is My Favorite Murder (Its American) Karen and Georgia each week talk about their lives, mental health and then delve into their favourite murders and talked of hometown crimes from fans of the pod and friends.
I weigh with Jameela Jamil is an incredible podcast that started off as a social media post has become a whole mental health movement. Jameela challenges societal norms through conversations with activists, influencers, thought-leaders and friends.They share their own experiences of mental health with very funny and vulnerable conversations. It empowers diverse voices and is an accessible way to celebrate progress, not perfection.
Are You Michelle From Skins is made by a good friend of Run & Fly April Pearson.After being asked for the last ten or so years - Are you Michelle from Skins? She wanted to start a conversation with other people in the media and limelight that are most known for one role. She cash with members of boybands, actors, soap stars and many more people on how that role impacted their lives and their careers moving forward.
Off Menu is a fabulous and funny foodie podcast hosted by the hilarious James Acaster and Ed Gamble. Each week a different guest comes on and talks them through their favourite starter, main course, side, drink and dessert. Don't forget the POPPADOMS OR BREAD?
Gossip Mongers is a hilarious podcast hosted by Joe Wilkinson and David Earl where people send in gossip they have heard from their town and they read it out and discuss. Sometimes it's silly sometimes it's gross and sometimes it's hilarious. At the end of the podcast they then vote for their favourite story of the week. If you have a quirky and twisted sense of humour you will find this very funny!
The Adam Buxton Podcast is a wonderful long running pod hosted by the aforementioned Adam where each weeks he speaks to a different guest and interviews them in conversation. He starts every week walking his beloved dog Rosie. I highly recommend the episodes with Louis Theroux!
Grounded by Louis Theroux defiantly needs a mention. Louis jumped on making pods when lockdown hit and he had not much else to get on with! He chats to the people he has always wanted to interview but never had time to.
Recently we shot with the lovely Ayesha who has the condition EDS and to be honest we didn't know much about the condition so wanted to find out more and how it impacts people who have the condition on a day to day basis.
We then found out May is EDS & HSD awareness month so we wanted to do our part.
We reached out to our lovely followers and customers who also have the condition to find out more and spread awareness of EDS and HSD.
What is EDS and HSD?
Ehlers-Danlos syndromes (EDS), and hypermobility spectrum disorders (HSD).
The Ehlers-Danlos syndromes (EDS) are a group of hereditary disorders of connective tissue that are varied in the ways they affect the body and in their genetic causes. The underlying concern is the abnormal structure or function of collagen and certain allied connective tissue proteins.
They are generally characterised by joint hypermobility (joints that move further than normal range), joint instability (subluxation (partial separation of the articulating surfaces of a joint)) and dislocations (full separation of the surfaces of a joint), scoliosis, and other joint deformities, skin hyperextensibility (skin that can be stretched further than normal) and abnormal scarring, and other structural weakness such as hernias and organ prolapse through the pelvic floor. In the rarer types of EDS, there is also weakness of specific tissues that can lead, for example, to major gum and dental disease, eye disease, cardiac valve and aortic root disorders, and life-threatening abdominal organ, uterine, or blood vessel rupture.
We chatted with the awesome @chronicallyjenni to find out more about living with the condition.
Being a babe with a mobility aid hasn't always been plain sailing. At first I kind of resented the fact that I needed one especially at such a young age. They aren’t always the prettiest things and it can make you feel a bit rubbish sometimes. But after decorating my first mobility aids and then finding companies which make beautiful mobility aids it's made me much more confident, and I hope that I can pass that on to other people and empower them to use their mobility aids with pride. I think it's really important to see people having pride in their mobility aids, they're not something to be ashamed of, and I love that more people now ask about my mobility aid because of it’s beauty rather than question the reason that I've got it.
The one thing that I really wish other people knew and understood about this condition is the uncertainty of it and the only way that I can find to relate that to someone without a chronic illness at the moment is the pandemic we’re all still living through. For the past year we're all living in the unknown and that's scary we're upset about the things we're missing whether that's birthdays or weddings or holidays or work or education, we’ve adapted but it’s still super tough, especially not seeing friends and family as much as we’d like. We’ve all been fighting this invisible enemy as best we can but for those of us with EDS and other chronic illnesses that's our lives every single day we're just sitting and waiting it for the next attack not knowing how we're going to be and what symptoms are going to come up from one day to the next. For those of you lucky to have your health this uncertainty will eventually end but for us it never will. I also have a great video on my youtube channel from last year featuring people with EDS & HSD from across the world talking about all the things they wish people knew about EDS and I’d love it if you could watch it and understand a little more.
The tough thing about living with an invisible illness is that people just can't comprehend it. They can't comprehend how someone can look absolutely fine yet being such extreme pain, so they don’t believe the pain exist. The condition may be invisible, but it is not imaginary! People also cannot comprehend the variability and how someone may need an aid or other assistance on one day but maybe not on the next. Sometimes I really wish I could give other people my symptoms literally just for a minute just so they could experience it and understand what it feels like to live in my body 24/7.
It's unfortunate but living with a chronic illness means that your fashion choices can become limited. Everything has to be comfortable so sometimes you have to compromise style over function. Most days I do pretty much live in my pyjamas but I love fashion, I love floaty dresses ,I love prints and different fabrics and wearing a great outfit when I'm feeling up to it always improves my mood.
You can follow me on Instagram @chronicallyjenni and also over on YouTube as chronically Jenni as well. If you want to learn a little bit more about EDS and what it's like to live with this condition my YouTube is a really great place to start. For awareness month, I've put together a series, like I do every year, involving people with Ehlers Danlos syndromes and hypermobility spectrum disorder from around the world to hopefully give people a better understanding of these conditions and what they like to live with. www.youtube.com/c/chronicallyjenni